May is gonna be SWEET!

May is kinda the best month ever. Voting’s over. It’s been decided.
There are so many awesome things to celebrate and climb up on a soap-box for in the month of May, and throughout the month I’ll be sharing education, encouragement, and my experiences with all of these things!
It’s like May is MY month (well, mine and Justin Timberlakes).
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I couldn’t help myself. I love this meme so much. Also I chose one of the memes that uses a photo of him with curly hair rather than one of his newer photos because A.) If I can’t out-run photo proof of my horrible hair in 1997, neither can he,   and B.) solidarity amongst curly hair people, and all that.
Pretty much all of my passions and life experiences have collided into 31 days of ‘awareness’. Not great for being able to spread out my blogging topics, but regardless, I know you’re super excited for me to pour out all my feelings into words. You’re welcome and brace yourselves:

  1. Foster Care awareness month.

wordswag_1525171656123.pngThis one is near and dear to our hearts, obvi. Will joined our family through foster care over 3 years ago and we’ve had the joy of supporting and loving and nurturing many other children over the years so I am excited to share our foster care journey with you throughout the month.
2. Apraxia Awareness month.
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For several different reasons I haven’t shared too much about Will’s various diagnoses here on the blog. I’m ready to share now, though, because knowledge is power and I’m a firm supporter of the “You don’t know what you don’t know” mentality. I think spreading awareness is so important, so we’ll all learn about Childhood Apraxia of Speech and Dyspraxia and allthethings together! When you know better, you do better. It’s gonna be SO fun!
3. Better Speech and Hearing Month.
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Some of you may not know, but I am a speech language pathologist. I work here in Southeastern Virginia at our local children’s hospital providing outpatient therapy. How awesome is it that the educational path God guided me towards years ago has created opportunities and experiences that allow me to not only work with my own son and his disabilities, but with every foster child who enters out home?!
4. National Kidney Foundation Kidney walk.
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These are held all over the US in various months each year but the one here in Hampton Roads is always in May! We get to celebrate my successful kidney transplant and the gift of life I received from my generous donor, as well as celebrate my mom and her awesome donor (7 years kidney strong!). God provided and he continues to provide for our family.
5. My Birthday! No photo for this. I just didn’t feel like digging up an semi-attractive photo of myself just to take up space. Also this one is pretty self explanatory: my birthday is this month. I want to say ‘I’ll pass’ but it doesn’t seem like it works that way.
I can’t wait to share more about all of my favorite things with you guys! No promises on daily posts or even bi-weekly…. you know how I do. You get what you get and you don’t throw a fit. Also, I like to set the bar low so I can soar over it. It’s sound logic, trust me.
 
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Store Bought Valentines & Parents Who Buy Them.

I know Valentine’s Day was last week and there’s probably Fourth of July decorations already out in the stores. America moves on quickly folks. But I’ve just gotta get these thoughts out there.
If you know me, then you know I love all things crafty. Glitter is my spirit animal and Pinterest is my happy place. Sitting down with some glue and ribbon or some paint and canvas is relaxing. I enjoy making things, and that expression pops up in birthday parties and Christmas gifts and our home decor where I usually start with “I’ll just keep it simple” and end up with “How did paint end up on the ceiling and glitter on my eyelashes?”.
But because life keeps happening and our kids still live here and seem to make all the messes and need all the attention, I can’t always set aside time or mental energy to sit and create something. Even something as simple as printing a valentine card and tying cute glasses to it.

(Isn’t this so cute?)

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Click here to find the tutorial and printable.

To all you mamas {and dads} who DO put the time and energy into putting together something fun and creative and personalized:

THANK YOU!

I love you because I love seeing your creative brainchild. You made my daughter say ‘awwww’ and you made me say ‘that is so clever’. Thank you for the time and energy you expended to do the extra bit. To go above the requirement. I commend you. You keep the holiday alive.
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However, this post is really about what I want to say to all you mamas {and dads} out there who purchased boxed valentines from a store.
You know the ones I’m talking about. They come in a box and no matter what pen your child uses on them the ink smears and it’s almost impossible to fold them perfectly evenly:
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Here’s what I want to say to you parents who buy those:

THANK YOU!

I’m not even kidding.
I love that some parents create Pinterest perfect valentines that are fun or punny or useful {hello glow sticks!}. But I really love those parents who buy boxed valentines for their kids. Seriously, I WANT TO BE YOUR BEST FRIEND. You parents who walk into Target on February 13th and toss whatever’s left in the Valentine’s aisle into your cart then walk around for 30 more minutes grabbing a workout DVD you’ll never open and 3 spatulas in Spring colors to add to your already excessive collection.
You know why I love you? Because I am you. I was apparently harboring some worry about what other parents would think when both of my children rolled up to school with these bad boys. Straight outta the box.
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It wasn’t that I was ashamed. I mean, look at this chubby kitten. He’s the definition of cute and Will thought it was hilarious.

I think I was having a hard time allowing myself to just check the task off my to-do list without adding any flair or extra work, as is my habit of doing. I embraced the bare minimum. I clung to it. I literally just did what was necessary, nothing more. and that is FINE.
So when my kids came home with several adorable handmade valentines and a TON of boxed valentines I was rejoicing! YES parents. THANK YOU parents. SOLIDARITY and all that. You allowed me to breathe. You allowed me to forgive myself.
Charlie got one valentine that was literally just folded in half. No to/from writing. No sticker. No nothing. and I loved it. I cheered for that mom. You know why? Because she obviously gave her son the box of valentines, a pen, and some independence and told him to ‘get it done’. and he did not. #lifelessons
Cheers. To all parents everywhere who are relieved Valentine’s day is over. Now off to see how little I can do for Saint Patrick’s day.
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That time I knocked over a grocery store display. And also {slightly less important}, that time I needed a kidney transplant.

This has been an interesting season of life for me. I’m actually the healthiest I’ve ever been. I’ve been working out so I am the strongest I’ve ever been, which makes me feel invincible and fierce. Unfortunately, I’m also the sickest I’ve ever been, what with my kidneys being wack and all. If you’re just tuning in, you can read about my genetic kidney disease here and its more recent progression here. So unfortunately, I’m not invincible and only sometimes fierce. But even in my moments of failure and weakness and fear, you guys…. God is SO good.
I had begun feeling stressed about this whole process recently, mostly due to a lot of wait time and unreturned phone calls and miscommunications and just a whole lot of ‘not great feels’. But God delivers what I need, when I need it. This week I was needing my phone calls to be returned from the transplant center and I just wasn’t getting the responses I needed and it was frustrating and stressful. But my prayer warrior mom and her prayer warrior friends prayed big prayers for immediate call-backs for me one morning. And I got those call-backs. Immediately. As in within the hour. Prayers answered.
You know what else God has given me? Breath in my lungs and the ability to place my feet on the floor and get out of bed each morning. This is not what I thought kidney failure would look like for me as I approached transplant. Granted, some days I am so tired I can barely make it to 1pm before laying down. And my appetite is a crazy rollercoaster that takes me from eating all the things one day to forcing a smoothie down just so I don’t pass out the next day. The nausea is annoying and the metallic taste in my mouth is disgusting. The headaches are debilitating and are the result of iron deficiency and not being able to eat enough. And the foggy brain makes me fear for my sanity, since my short term memory seems to be non-existent.
All that laid out, it’s still just headaches and nausea and exhaustion and foggy brain. I endured all that and more while pregnant with Charlie so I can endure it again on a larger and more severe scale with kidney failure, no big deal. Somehow God provides me with enough energy to sustain me when I need it. And on those days when I am not able to do all the things, He has provided an amazing support system who picks up the slack. My mom comes over often to help me stay on top of laundry and cleaning and life in general, my co-workers let me ask them redundant questions when my brain fails me, my job schedule is flexible, I have my own personal workout coach who gently prods me to come and work out, and my husband allows me to sleep when I need it without a single complaint.
Somehow, things still get done. For instance, on Thursday this week:
I worked {as a pediatric speech pathologist}, and
got a flu shot {which caused the hypochondriac in me to start feeling flu-ish aches by mid-afternoon}, then
had a phone conference {which zapped some of my mental energy allotment}, then
vacuumed my floors and got a load of laundry started when I got home {with kids hanging on me like little leeches}, then
worked out at the YMCA {total beast mode}, then
went grocery shopping with both kids, and
gave in and let the kids have the ‘car cart’ {for once not being mean mommy by saying no}, then
crashed the big dumb ‘car cart’ into a display of sunflower seeds {because its turn radius is nonexistent}, knocking the display over and scattering the packages all over the aisle, then
finally got out of the store and put all the groceries away when we got home, then
put the kids to bed by myself because Chris was at band practice, then
fell into bed.
The end.
Evidence of the ‘car cart’ ruckus pictured below:
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Not every day is that successful. Honestly, most of them are not. If I get a load of laundry washed and into the dryer each day then that’s a success, even if the load never makes it out of the dryer. I’m just too tired most of the time.
But I can still have adventures with my family and workout and handle toddler tantrums and play with my kiddos and supervise homework and work at a job which I love and volunteer at church and hang out with friends.
I’m sick, but I’m alive and life is still good. I can’t believe I’m able to do all the things I can do as my kidney’s fail. Each day I’m thankful for the joy and love and happiness that wrangle more space in my mind than the fear and anxiety and depression. Ain’t nobody got time for yucky vibes. God offers me peace and comfort daily, so I’m clinging to that as things progress.
Yesterday I spent all day at the hospital having tests completed (Echocardiogram, EKG, ultrasound, lab work, and x-rays), then Chris and I met with the transplant team and the surgeons.
The next step will be to try and find a living donor match before I have to go on dialysis. That’s where you all come in. The deceased donor wait list is approximately 5 years long, with nearly 100,000 people in the US waiting for kidneys transplants. I am praying bold prayers that God will provide me with a living donor kidney before I have to go on dialysis. Please share this post for me. Please pray for my future donor.
And please consider donating, even if it isn’t to me. You can read about “non-directed” organ donations and “paired” donations from UNOS { www.unos.org}, in which you can donate a kidney to someone who is waiting for a kidney transplant in the US, even though you don’t know them.
Potential living donor candidates for me must have Type O blood {positive & negative factors do not matter}. You can fill out the Health History Questionnaire if you are interested in finding out more and want to begin the process to see if you are a candidate.

www.sentaralivingdonation.com

{You’ll need my birth date, which is 05/04/1985}

If more than one living donor becomes available to me, further medical testing {lab draws and health exams} will determine which match is optimal for all parties involved.
Thank you for rallying around Chris and I on this journey. Sometimes I hear from people that they’ve forgotten I was sick, which I believe is a testament to how God has sustained me. I know He will continue to sustain me and will provide a living donor kidney for me. I’m speaking it out. And God hears and He will deliver. amen.
XoXo,
Ashley

Say Yes.

I did something today that was really difficult.
I accepted help from someone.
A close family friend, who has been like a second mama to me since birth, told me she wanted to come over and help me with whatever it was I needed help with. Can you believe that thoughtfulness?
Of course I wanted to say no. My first thought was “Um… absolutely not, because then you will see my home and see my mess”. The thought was horrifying, because Mrs Sherry is someone I hold in the highest regard. She is the quintessential homemaker. Mary Poppins, even. Practically perfect in every way. So I really wanted to say no.  But she cornered me and called me on the phone and made me promise I would accept her help. I couldn’t say no, and I’m so glad I didn’t.
I’ve been so tired lately and just feeling pretty yucky. As I’m sure you know, all it takes is one or two days of not doing housework for things to begin piling up; and playing ‘catchup’ is like a Unicorn. Spoken of in hushed, whispered voices but there’s never any solid proof of someone actually catching up on all their housework. And the mini Bakers in our home seem to approach scattering toys and pouring food on the floor like it’s their job. Not to mention how much laundry they create. Lately I find myself just getting through the top few tasks on the housekeeping to-do list, whatever is a necessity for us to keep on living; the rest of the to-do’s are relegated to the bottom in the “I’ll get to it when I get to it” section. Like cleaning out the fridge. So that’s what Mrs. Sherry helped me do today. She was totally prepared to tackle it by herself, but I’ve been feeling good this week, so we worked on it together. Just having someone work alongside me helped the task seem more manageable and prolonged my energy so I didn’t feel like sitting down halfway through.
My mom will often come over to help me tackle a project, too, and she’s been doing that since forever because she knows me and my unorganized self and knows I’m the “starter of many projects, finisher of very few”. It’s hard for me to accept her help as well, but I do; especially now because I really need it… and also she doesn’t really ask. She just sort of shows up {which I love}. And she’s proven over the years that she still loves me in spite of those times when I just can’t do anymore and my home bears the consequences, despite my wishes to do more and be more. More organized. More consistent with cleaning. More adept at ironing. The list goes on.
I know I’m not the only one out there who has a hard time accepting help from others. I honestly had a hard time resisting the urge to clean everything before my helper came over today. There’s something about allowing someone into your home that shines a spotlight on your vulnerabilities. The real you.  The real home. You know, the home you live in with its dishes in the sink and questionable liquid beside the toilet because kids? {Side note: if you are one of those people with a housekeeping superpower and your clean folded clothing makes it all the way to the dresser, this post is not for you. move along. actually, please stay. Stay and share your secrets with us. We want to be you. for real}.
Allowing people to see the areas where we are big fat failures opens us up for judgement. And I don’t know about you, but I will flat out cry ugly tears if I think someone may be judging my housekeeping skills. I mean, I judge myself every day for my inability to commit to seeing the laundry through from start to finish; but that doesn’t mean I’ll survive someone else judging me for it. For some reason I seem to equate receiving help with acknowledging my imperfections to the outside world. I wasn’t able to do it, so they had to step in. And that makes me feel like poop. Constantly failing at getting everything done that I wish to get done.
But guess what? I can’ t do ALL THE THINGS. I just can’t. I’ve had to remind myself daily of this natural law of time passing that there are just some things I’m not able to do. Each day I have a “To-Do “list. Which means each day I also have a “Don’t” list. A list of things I won’t be able to get to. When work and church things and the gym and Will’s therapies and laundry and grocery shopping are on the to-do list, that usually means I won’t be painting my baseboards or sifting through the pile of paperwork that has accumulated on the counter or maybe only one bathroom gets cleaned.  Maybe others are judging me for that. I feel like it might be human nature to judge others by the amount of things that fall on someone else’s “Don’t” list. But I don’t want that to be my nature. Instead we should be looking more closely at others “To-Do” lists and thinking of ways we can help alleviate their burden. Not because they are failing at life {though sometimes it feels that way}, but because helping one another is what God created us to do.

Those of us who are strong and able in the faith need to step in and lend a hand to those who falter, and not just do what is most convenient for us. Strength is for service, not status. Each one of us needs to look after the good of the people around us, asking ourselves, “How can I help?”

Romans 15:1

I don’t think this verse pertains to only spiritual needs, and if God calls us to look after those around us and help where we can, then he is also expecting us to accept the help that is offered to us.
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I’m not sure why I don’t wan’t to say Yes when others offer to help me. I mean, when I offer to help someone clean or run an errand or whatever it may be, I’m offering because I want you to know “I SEE YOU, and I UNDERSTAND, and ME TOO…. so LET ME HELP”. I’m certainly not saying “oh my lawd….. can you believe she doesn’t fold her fitted sheet? I’m gonna help this poor dear do this properly because she is obviously a wreck at life”.
If people do judge me {which I’m sure they do, because people are Judgy-McJudgersons} it’s not like they are thinking something I don’t already think about myself; but if I’m being truly honest, it’s that fear of judgement that keeps me from saying ‘yes’ when someone offers to help me. If I don’t accept help, and if I don’t let them in to see the real hot mess that is my life, then I can continue to fool the rest of the world into thinking I’m a successful adult.
There are very few people who I allow to come into my #nofilter home and wander about. They’ve been vetted and don’t seem to care about the crazy craft supply corner in my room and don’t bat an eye at scooting 3 loads of laundry aside on the couch so they have a place to sit.  Today, I gained another #nofilter friend because I said YES, even though I wanted to say NO. She came. She brought me coffee. She cleaned. She let me cry on her shoulder. Then she left and said “See you next time”. and I’m so incredibly thankful for that.
Let’s act like God urges us to act. Lend the hand. Offer the help. Walk beside and ask “What can I do?”.
Which also means:  Be willing to accept the offer. Drink the coffee. Use the shoulder to cry on. Open the fridge and show the mess.
xoxo,
Ashley